I also have that phenomenon that I didn't know was "a thing"- when I close my eyes, I don't see black - more a reddish static)
Oh wow, I didn't know that was thing. I see a dark reddish brown static too. Huh. I don't really think about it much, but it's redder when I have a headache, and darker/blacker when I don't.
Hey, I'm all for using the placebo effect if it continues working - or maybe there is something to this?
I have always been of the opinion that if the placebo means it works, then that's all to the good!
I've had sporadic headaches since high school, but they increased in frequency in the early 2000s. I started with a triptan only in the last 7 years or so to take when I sense one coming which has given me days back - almost always stops it with just one dose, though there is a limit to how many to use/month and I was going over some months. (I used to lose days going back to bed or just suffering through) Started Qulipta about a year ago, but that hasn't changed frequency significantly - also some of the meds are hard on heart, liver or kidneys so trying to keep those numbers in range. Moved on to Botox treatments - had to go through all the other options first. I just had one treatment which they said may not do much. Second treatment is scheduled for the end of the month and that seems to be when most patients notice a reduction in frequency.
Good luck with the botox! I know someone who finds they really help her. I'm sorry Qulipta didn't do it for you. Have you tried Nurtec or any of the other newer meds?
I used relpax (which I think is generic name eletriptan) and the side effects got progressively worse. I also took amitriptyline as a preventative daily for a little over 10 years, and that one also had awful side effects. Getting off of those two and onto my current meds was such a huge improvement for me. They were awful.
Migraines? Clusters? I get the sense no one really knows for sure and they just guess and see if something helps.
Yep, that's my impression too, and I think cluster headaches are even less understood than traditional migraines.
Anyway, I hope the hat keeps helping you!
I would just rather make repertoire choices based on what I want to play, as opposed to have to make choices based on something I’m not able to do.








